Monthly Archives: August 2008

Multiple Sclerosis and Emotional Counseling

Before I had MS, I never thought I’d seek the help of a therapist. My life was pretty normal and nothing was so stressful or overwhelming that positive thinking or a good night’s sleep couldn’t cure. I knew some other people who were in therapy and/or taking antidepressant medications. For one reason or another, they had to seek counseling to sort out their problems, whether they were family-oriented, job-related, or from plain old organic depression.

Then I became the first out of my cohorts to develop a chronic, serious medical condition, otherwise known as MS. I became the one who people commented about: “How’s Jen doing?” “Has Jen been feeling okay lately?” And I suspect: “Do you think Jen will be okay? Do you think there will be a cure for her before she gets too bad?” This alone could send anyone into therapy.

When I was 34, my multiple sclerosis attacks became more serious, as I experienced a long bout with double vision, was unable to drive for 6 weeks, had many struggles making it to my part-time, low-stress library job, and was getting acclimated with doing injections and suffering from their side-effects. The job of do-it-yourself therapy came to an end as I realized the need for emotional counseling. This is what I discovered:

  • The odds of having MS and needing an antidepressant are great. Multiple sclerosis can cause situational as well as organic depression. Coping with a chronic, life-altering disease can be depressing, and taking a disease-modifying medication (interferon drugs particularly) can add to depression. Interferon meds— Betaseron, Avonex, and Rebif— are proven to lower serotonin levels (the physiological cause of depression.) Add to this the possibility of acquiring MS lesions in areas of the brain that monitor mood, and there are overwhelming odds that depression will set in.
  • There are various types of therapists at our disposal. A psychologist, a PhD-holding professional, can counsel patients and offer psychological feedback. A counselor, a professional with a master’s degree in psychology, is another type of therapist. Social workers, with master’s degrees in clinical social work, also counsel patients and have access to many community resources for further help. I have been in counseling with a social worker for over 2 years, after first seeking the help of a psychologist. I found the latter type to be more interested in the psychology of my problem, whereas the social worker gives more practical, everyday advice.
  • Psychiatrists, who have the reputation for being the most highly-educated psychological professionals, now usually just prescribe medications. They have gotten away from the counseling and tend to “check in” with patients and see how the antidepressants/anxiety meds are working. Something to do with what insurance companies will presently pay them.
  • Therapy can be as much as a few times a week or once every couple of months. I initially went once a week, then I cut it down to every other week. I went once a month during the easier times, then once every couple of months, and now I’m back to once every couple of weeks as I sort out this most recent multiple sclerosis relapse/setback.
  • Counseling is covered by most insurance plans. I pay the same copay as I would for a primary doctor’s visit. However, there are sometimes caps to how many visits a person can have for a one-year time period. It’s important to check with your insurance provider.
  • Counseling helps me vent my frustrations, anxieties, and goals to an unbiased ear. This is the counselor’s job, whereas my loved ones sometimes need a break from the MS woes. Being unbiased, the counselor can also give practical advice. She isn’t swayed by emotions, and will help me make objective plans and figure out new strategies.
  • Therapy is not for everyone. I find it cathartic, much like writing for this blog. Others might not feel this way. It’s an individual decision, just like deciding to take an antidepressant or any other medication. If you are suffering from anxiety or depression, it might be a good idea to seek counseling, though, because you don’t have to suffer. It’s your decision. As His Holiness the Dalai Lama states in his recent book How to Practice the Way to a Meaningful Life, “Please adopt whatever might assist you. If you do not think it would be helpful, just leave it alone.”

MS Sunny Day

Google Images

Hallelujah! It’s a nice, non-humid day in New Jersey. I volunteered at the library for 2 1/2 hours, looking up the age/grade levels at the Amazon and the Barnes and Noble websites for the donated “Sparks” program books. The volunteer coordinator said they sent their 1st batch of crates to the 2 social service agencies, where kids waiting to be placed in foster care can choose 3 books and receive backpacks. I also put “This book belongs to_________” plates in the front of a bunch of books. This program is great, and I’m glad I started working on it during its infancy. I’m finding that if I take my medication earlier in the day, I don’t get “wake-up” fatigue, so I have been able to get to the library 4 out of 5 times so far. Not bad!

So I’ve been getting myself out and the next thing to tackle is a yoga class. A woman is holding them at a first aid building down the road. Sounds like she has worked with people with diminished mobility (she has had classes where people use chairs for aid.) I’m gonna try the Tuesday evening class first, because I really am still a night owl.

We’re probably gonna go see the new Batman movie sometime this weekend. And I’m visiting my friend/old roommate and we hope to hit the LL Bean store (only one in this neck of the woods.) I will go slow and rest when I should, even though I don’t want to.

Peace out and enjoy the weekend… Jill, if you’re reading this post, we’re trying to get to the aquarium before you go back to teaching. We want to get Steven there, because he had such a great time last year.

‘Bye!

PS: Look for information on MS and seeking emotional therapy in the next post.

Multiple Sclerosis and Blogging

Microsoft.com

Okay, I’ve been blogging now for almost 2 months. As a writer for a women’s health website, I have a tendency to report the facts, mainly from the 3rd person perspective. I research health topics and collect my sources to document at the end of the articles. I have journalistic instincts in my blood (probably dates back to college, where I wrote plenty of papers towards an English degree.) I learned how to write from the opposing view (playing devil’s advocate?) I even wrote a (very bad) screen play! But blogging for the public eye……This is quite new.

What I’ve learned so far from this experience is that I am still quite a journalist and my site is a bit of a hybrid. I like to think of it as a website with a blog format. My husband Bill is the website development nerd: he knows how to create them with HTML, Frontpage (a formatting device), search engine optimization, and reciprocal linking. I am more of the creative force, concerning myself with the writing, photo selection, internal linking, and commenting. Together we’ve created a website which happens to have a blogging format— WordPress. A couple of times I’ve had to tone down his entrepreneurial instincts with the plea, “It’s a website, but it’s about a personal topic— people’s health.”

That said, I’ve actually found blogging to be a cathartic activity. I’ve posted at MS message boards before, under the anonymity of a user name. Here, my MS story is open and available to many people— strangers, loved ones, new blogging acquaintances. It is a place to drop some guard and post what’s really on my mind. Yet the journalist in me still tugs in the direction of business. So a hybrid website it is. A touch of personal with a dash of unbiased journalism. And of course, search engine optimization….

What I’ve found and liked in others’ multiple sclerosis blogs are the real, raw emotions. I’ve (slowly) read a few other sites and have found them so open and honest. Writers blog about their symptoms, their limitations, their strengths, and their frustrations (usually towards the health care industry.) I’ve read some poignant poetry, some gratitude lists, a bit of news about the gay and lesbian communities, and rants about the US’s sh-tty health system and insurance industry (and Canada’s more universal coverage— Michael Moore: you were right!) I think one of the most touching blogs is one in which the writer vents but does not comment or link to others. Almost a private diary, but with the benefit of letting others listen.

So I think I’ll always have a bit of the journalist’s eye, deciding on key word density and internal links that make articles and blogs easier to find in a search engine. Can’t help it. My other health site’s pretty much brainwashed me into doing this! But I’ve learned from other MS bloggers the joy and freedom of letting down some guard and writing from the gut. For such reads, it’s good to start at the MS Carnival of Bloggers homepage, where you will find links to many bloggers and their personal MS stories.

To wrap things up, I like to think of a blog as a loose-leaf notebook, with many pages in chronological order. Now, imagine opening up that notebook on a windy day. You’re maybe trying to remove a page from the binder, and whoa!—- they start flying out everywhere. But think of a person stumbling upon one of those pages and being touched by what you wrote. Another person comes across a tattered page, found on the street many miles away. Blogging is like sending out pages of a private notebook to the wind. No matter what the format (journalistic, personal, ranting, prayerful), the end result is touching a complete stranger’s life and making them feel a connection.

MS Med Tysabri Linked to 2 More Cases of PML

Tysabri, an aggressive treatment for multiple sclerosis, has had a history of infamy. It is associated with causing a rare neurological virus, progressive multifocal leukoencephalopathy, in a handful of patients. After two years back on the market, it has nevertheless helped many patients who do not respond to the traditional disease-modifying meds (Avonex, Betaseron, Copaxone, or Rebif.) For the full story, read Lisa Emrich’s entry about the recent situation (her blog, “Brass and Ivory”, provides insightful information about pharmaceutical corporations and health insurance issues important to those with multiple sclerosis and other chronic health conditions.)

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