MS Strength

Within every Multiple Sclerosis Patient there Lies an Indomitable Strength.

Archive for May, 2009

Out on Leave

Posted by Jen On May - 28 - 2009

Bill and I are heading out early tomorrow on a road trip to Savannah, Georgia and Hollywood, Florida. He has work-related stuff down in Hollywood, so we’ve decided to make this a full-blown (and much-needed) vacation. I’m really excited about Savannah: it’s supposed to be the most haunted city in America. I always thought New Orleans was (THAT was a great trip, too!) And one of my favorite books—an account of true Savannah events by Esquire journalist John Berendt — is Midnight in the Garden of Good and Evil, which chronicles southern charm and MURDER. Very interesting and ironically funny. I definitely want to check out the cemetery where some of the “voodoo” happened.

Be back in Jersey on June 7th….

World MS Day 2009

Posted by Jen On May - 27 - 2009

Today marks the FIRST World MS Day, which is an international attempt to unite the world in MS awareness, knowledge, political action, and camaraderie.

Here are some ways that nations are getting involved:

  • Argentina: requested day be formally recognized by government
  • Australia: reception in Queensland
  • Belgium, Canada, France, Luxembourg, Switzerland: “Roll for MS”
    sponsored cycle/ motorbike event
  • Denmark: fundraising event
  • Finland: city wide awareness-raising event
  • Hungary: event in parliament
  • India: human chain awareness-raising events
  • Ireland: activity to promote member development
  • Italy: moved national awareness week to include the day
  • Netherlands: Global Dinner Party/ Second Life event
  • Norway: research conference in Oslo
  • Romania: Global Dinner Party
  • Slovakia: Dignified Life with MS seminar
  • Sri Lanka: week long awareness raising events
  • Sweden: fundraising event
  • Turkey: concert and gala dinner

Interesting Tidbits:

***The United States National MS Society urges everyone to petition their federal legislators to support comprehensive and accessible health care coverage that includes the Society’s Health Care Reform Principles. This would ensure that all Americans with MS get proper medical care.

For more news, events, and information about World MS Day, visit www.worldmsday.org

Fair Warning for Fair MSers

Posted by Jen On May - 26 - 2009

May has been fraught with car repairs, a very pricey new crown for a cracked back tooth, and a precancerous mole removal/further biopsy. Although the car and tooth stuff have been expensive and frustrating, the mole situation has been far more disturbing.

I grew up and now permanently reside here at the shore. I’ve had multiple bad sunburns over the years, given that one of the big past-times here is, well, SUNBATHING. I’m not one to cook on the beach anymore, but I do enjoy getting a little color and relaxing by the water. Unfortunately (like many fair-skinned MSers), I burn very easily and need to be careful about my exposure.

One of my most vulnerable areas is my chest, since I have a sunroof which I love to keep open and this area also gets continual exposure while wading/swimming, sitting, or lying flat on a towel. I am not a very moley person, but I’ve noticed subtle changes recently with the appearance of a few new moles and one small, dark mole in particular. The mole in question was on my upper right chest, near my bathing suit strap. It was very small (a couple of millimeters in diameter), almost black in color, and in the last month I noticed it had developed an uneven border, which to my knowledge is a definite reason to get it checked out.

The dermatologist did a thorough head-to-toe skin exam and focused in on that black mole. Sure enough, she wanted it removed for a biopsy. So it was removed that day and sent in for testing. When I was phoned a few weeks ago, the office staff let me know that the biopsy turned up “dysplastic” cells. These are not yet cancerous, but they are abnormal in structure. Sort of a turning point towards melanoma, which is the deadliest form of skin cancer. So back to the dermatologist for a procedure to remove tissue (directly beneath where the mole had been) about a quarter’s size in diameter and about the same size in depth. This tissue would be sent back to the lab to be biopsied, revealing whether only the surface mole had precancerous cells, or whether the damage had penetrated the surface and gone deeper.

To make an already long story not too long: I had the tissue removal and second biopsy a couple of weeks ago and just got the stitches out today, after such MAD itching. UGH. My second biopsy came back normal— I’m thrilled and relieved—and now I’m gonna get some Mederma to work on the scarring. I need to return in three months for a follow-up and then have a yearly skin exam thereafter.

Final thoughts: I was dragging my heels for a couple of years getting in to see a dermatologist, even though I know I am a high-risk patient (skin type and amount of sun exposure.) Now I’m so glad I bit the bullet and just did it, because a simple skin exam (covered by most insurances) probably saved my life.