I’m looking forward to getting a copy of this new multiple sclerosis book I’ve recently discovered. Two of my favorite online writers, Diane and Joan, have been included in an MS anthology that gives patients’ stories about the trials and victories of living with multiple sclerosis. The book is Voices of Multiple Sclerosis: The Healing Companion, with more than 30 individual stories about dealing with the condition:

States Diane: “LaChance Publishing has sold books filled with the personal stories of those whose lives have been touched by breast and lung cancer, autism, Alzheimer’s, and most recently multiple sclerosis. The “Voices of…” book series is critically acclaimed, and 100% of the net proceeds go toward the foundation Debra LaChance has started. Read about The Healing Project and buy a book for yourself or a loved one who is dealing with a health condition in the book series.”

“When I was first diagnosed with MS, I searched (and purchased) any MS book I could find. I still have them all. But, with the exception of a few autobiographies, there were no stories about the experiences of regular people. I had learned the technical aspects of my new friend (multiple sclerosis), but I would have given anything for a book like The Voices of Multiple Sclerosis. Not only does it cover, in easy-to-understand terms, all the facts about MS, but it is also filled with short stories written by others with MS, as well as those who care for someone with the condition. And unlike many other books, it is light-weight and easy to hold. I couldn’t put it down until I’d read every story. I am honored to have one of my stories included in this book.”

***Voices of Multiple Sclerosis is available in bookstores, at online booksellers ( Amazon.com), in most major libraries, and at LaChance Publishing. This would make a great holiday gift for the newly diagnosed, veteran MSers, or anyone who wants to better understand multiple sclerosis.

]]> http://www.msstrength.com/new-non-profit-ms-anthology/feed/ 0 http://www.msstrength.com/review-women-living-with-multiple-sclerosis/ http://www.msstrength.com/review-women-living-with-multiple-sclerosis/#comments Sun, 02 Nov 2008 03:48:10 +0000 Jen http://www.msstrength.com/?p=734

Women have a tendency to form close bonds with other women. It’s an intrinsic quality and it seems almost necessary for emotional survival. Men have their bonding methods (the Superbowl, horseshoes, golfing, and smoking cigars), but women naturally gravitate towards other women for feedback, inspiration, and support. It’s not surprising then that ladies with multiple sclerosis often find themselves in close-knit circles such as support groups, chat rooms, message boards, and blogging communities. One such online group forms the basis for the exceptionally heartwarming book Women Living with Multiple Sclerosis.

Written by professional journalist Judith Lynn Nichols, this book tracks the online camaraderie of 20+ women who formed their own email support group after meeting each other through a message board. Nichols tells of her own 30 year battle with MS and discusses how it affected her child rearing and her marriage. Her career as a reporter was also affected as her disease progressed, and she found solace and understanding with this group of tough MSers, dubbed the “Flutterbuds” due to members’ memory flutters.

The group discusses such topics as cognition issues, constipation, sexual challenges, the common “But you look so good statement”, disability income, and working with multiple sclerosis. The beauty of this book is that each topic comes with a multitude of opinions, personal experiences, and solutions. Together, the group supports and encourages those who need it. It is a testament to true, deep friendship.

This book actually came into my life before I had a good idea of what multiple sclerosis was all about. I was in a state of denial for some time, because I could get away with seeming “normal” for a number of years. Now I find this book comforting because it makes weird, scary symptoms acceptable and okay as these women share their experiences with all of them. Nothing is too strange or crazy among this tight clan and readers will feel included in their understanding and camaraderie.

PS: There is an excellent sequel to this book, Living Beyond Multiple Sclerosis, which continues the story of the “Flutterbuds” and tackles new MS topics.

I have in my possession a great book for newbie MSers. I found it a few years ago at a book store, and I still refer to it. It’s The First Year – Multiple Sclerosis, by Margaret Blackstone. The author is a seasoned writer who has published other medical works as well as poetry and children’s books. And Ms. Blackstone has been living with MS.

The book is part of a series of health guides for first year patients. They all follow a basic structure, which starts off with the first day of having a diagnosis. The guides give advice for days 1-7, then weekly information for the first month, then tips for each month thereafter until the one-year mark of having been diagnosed.

In The First Year – Multiple Sclerosis, Blackstone gives great advice for the first turbulent week after an MS diagnosis. She allows readers to rant, feel pain and confusion, and at the same time she gives practical information about MS basics, tests, ways to build a healthcare team, holistic care, advice about who to tell, and ways to cope.

During the first month, Blackstone explains MS myths and stereotypes, ways to make daily life a little easier, wellness strategies, information on relapses, and facts about the disease-modifying medications.

The First Year – Multiple Sclerosis goes on to describe ways to manage symptoms, cope with stress, eat healthy for more energy, employ alternative medicines, handle health insurance, maintain intimacy and start a family, and learn about trends in multiple sclerosis research. The information is presented in a one-year format, so it doesn’t become overwhelming and it gives those new to MS a way to chart their courses and have some control over an unpredictable situation.

What I love the most about this book is that although it is written for the first year after diagnosis, Blackstone touches on so many topics that are important in any stage of the condition. For more information about The First Year – Multiple Sclerosis, click here…

I just came back from volunteering at the library and I’ve had a certain book on my mind. I read it during some MS relapses, just to remind myself of what’s really important. I’ve read it again recently because I’m probably jonesing for some good non-fiction and haven’t found any. Nevertheless, here’s one of my favorite books and the reasons why:

The Four Agreements by Don Miguel Ruiz has simple, layman’s techniques for living a joyful, true existence. This Mexican spiritualist explains his Toltec beliefs that transform a life of suffering and sadness into a vehicle for optimism and growth. He uses four simple ideologies to help steer people in the direction of happiness, no matter what their circumstances:

• The first agreement is “be impeccable with your word.” It doesn’t quite mean what it implies. I initially thought it meant “don’t lie or make empty promises”, but it is quite a bit more. Ruiz explains that whatever comes out of our mouths should be honest but also pure in intention. People are guilty of slandering others and passing along useless gossip and negative energy. I know I’ve been guilty of such. Ruiz says the first step to happiness is to remove such verbal weaponry from your life. Then intention can become pure and true.

• The second agreement is “don’t take anything personally.” Sounds simple enough, but there’s more to it. Everyone has his or her own agenda, thoughts, background, personal situation, and so on. What comes out of a person’s mouth is merely a reaction to his or her own situation, and nothing to do with you personally. It might seem that way, but because we all have struggles and personal lives that are not completely apparent to others (usually), we can never take insults or ignorant responses personally.

• The third agreement goes naturally with the second agreement: “don’t make assumptions.” Again, Ruiz mentions, it is impossible to know everything about a situation or a person, so to assume things about others can make you take information or words personally. Then you become caught up in the vicious cycle of slandering and then being slandered. Tough, unproductive cycle. Ruiz suggests taking everything with a grain of salt, because you really only know fully about yourself. The rest of life is made up of other people’s realities.

• The fourth agreement (which is my favorite and probably a great mantra for people with multiple sclerosis): “always do your best.” This is just a matter of taking each day and giving honestly what you can. Today’s best might be venturing aided or unaided down the street. Tomorrow’s best might be intently reading a good book and gaining knowledge. Ruiz emphasizes the importance of achieving the first 3 agreements to leave the mind and body pure to accomplish one’s personal best. And one’s personal best is always enough.

I would add one more personal agreement that I try to follow: “have a sense of humor.” Because it’s gonna take a hell of a sense of humor to stick to the rest of the agreements! Find out more about The Four Agreements…