Comments on: From MS Relapse to MS Relapse http://www.msstrength.com/from-ms-relapse-to-ms-relapse/ Within every Multiple Sclerosis Patient there Lies an Indomitable Strength. Wed, 01 Sep 2010 14:31:41 +0000 http://wordpress.org/?v=2.9 hourly 1 By: Jen http://www.msstrength.com/from-ms-relapse-to-ms-relapse/comment-page-1/#comment-74 Jen Tue, 05 Aug 2008 18:02:09 +0000 http://www.msfriend.com/?p=31#comment-74 Thanks, Brian. I'll let you know if I work up the guts to attend a support meeting! Feel good, Jen Thanks, Brian. I’ll let you know if I work up the guts to attend a support meeting!

Feel good,

Jen

]]> By: Brian http://www.msstrength.com/from-ms-relapse-to-ms-relapse/comment-page-1/#comment-73 Brian Tue, 05 Aug 2008 16:40:56 +0000 http://www.msfriend.com/?p=31#comment-73 Hey Jen, Thanks for the comments on my page. I know exactly what you mean. I was the same way for a long time. Hope all is well! -Brian Hey Jen,

Thanks for the comments on my page. I know exactly what you mean. I was the same way for a long time. Hope all is well!

-Brian

]]> By: Jen http://www.msstrength.com/from-ms-relapse-to-ms-relapse/comment-page-1/#comment-69 Jen Fri, 01 Aug 2008 21:42:25 +0000 http://www.msfriend.com/?p=31#comment-69 P.S: I'm gonna give yoga a try this month. Senior group 1st! P.S: I’m gonna give yoga a try this month. Senior group 1st!

]]> By: Jen http://www.msstrength.com/from-ms-relapse-to-ms-relapse/comment-page-1/#comment-68 Jen Fri, 01 Aug 2008 21:40:33 +0000 http://www.msfriend.com/?p=31#comment-68 Thanks for listening, you guys. Sometimes I wonder if such strong steroids are necessary. Maybe like with you, Anne, it's better to try a lower dose of oral prednisone. I think my doctor sees me and sees those further down the MS path, and he gets aggressive with treatment. I don't want to take steroids more than once a year (which I never have.) I have a friend in her 40's with a more aggressive case, and she gets Tysabri with a treatment of steroids first, because she has her throat feel like it's going to close with the Tysabri. So she's getting an IV solumedrol treatment once a month. That sounds like too much! Plus it lowers immunity against other things. But what can she do? I'm just glad to be done with this recent relapse, although my left leg is a bit weak and my "restless leg syndrome" has come back at night (annoying.) But I'm glad to be somewhat mobile and functional. Thanks for listening, you guys. Sometimes I wonder if such strong steroids are necessary. Maybe like with you, Anne, it’s better to try a lower dose of oral prednisone. I think my doctor sees me and sees those further down the MS path, and he gets aggressive with treatment. I don’t want to take steroids more than once a year (which I never have.)

I have a friend in her 40’s with a more aggressive case, and she gets Tysabri with a treatment of steroids first, because she has her throat feel like it’s going to close with the Tysabri. So she’s getting an IV solumedrol treatment once a month. That sounds like too much! Plus it lowers immunity against other things. But what can she do?

I’m just glad to be done with this recent relapse, although my left leg is a bit weak and my “restless leg syndrome” has come back at night (annoying.) But I’m glad to be somewhat mobile and functional.

]]> By: Anne http://www.msstrength.com/from-ms-relapse-to-ms-relapse/comment-page-1/#comment-67 Anne Fri, 01 Aug 2008 12:55:55 +0000 http://www.msfriend.com/?p=31#comment-67 I find that whenever I flare, I need to judge whether it is something I can get through without steroids or if it is bad enough to warrant going on them again. I usually opt for a short term oral dose starting at 80 mg prednisone for two days, tapering down 10 mg a day to the last two days of 10 mg each day and then down to 5mg and then done. Every flare/relapse leaves a residual with me. Most times it is a leg thing - a drag, a hesitation, or a heaviness. Sometimes it is cognitive - word fishing, being slow on the uptake of conversations. I think because I have accepted that something WILL definitely hang around after a flare, I don't seem so hung up about it. If nothing hangs around, I won that battle. If something hangs that no one notices, then that is good but it needs to be watched by me. Not every flare needs to be medicated. Sometimes rest is the answer; sometimes therapy is the answer. I try not to be so quick to treat with meds - but sometimes it is the only answer. Good luck in your journey, Anne I find that whenever I flare, I need to judge whether it is something I can get through without steroids or if it is bad enough to warrant going on them again. I usually opt for a short term oral dose starting at 80 mg prednisone for two days, tapering down 10 mg a day to the last two days of 10 mg each day and then down to 5mg and then done.

Every flare/relapse leaves a residual with me. Most times it is a leg thing – a drag, a hesitation, or a heaviness. Sometimes it is cognitive – word fishing, being slow on the uptake of conversations.

I think because I have accepted that something WILL definitely hang around after a flare, I don’t seem so hung up about it. If nothing hangs around, I won that battle. If something hangs that no one notices, then that is good but it needs to be watched by me.

Not every flare needs to be medicated. Sometimes rest is the answer; sometimes therapy is the answer. I try not to be so quick to treat with meds – but sometimes it is the only answer.

Good luck in your journey,
Anne

]]> By: Nadja Tizer http://www.msstrength.com/from-ms-relapse-to-ms-relapse/comment-page-1/#comment-66 Nadja Tizer Thu, 31 Jul 2008 21:00:38 +0000 http://www.msfriend.com/?p=31#comment-66 I am glad you are taking things in stride. I sometimes wonder when and if I will have another relapse. Either way, like you, I am now better prepared to cope with whatever comes. I am glad you are taking things in stride. I sometimes wonder when and if I will have another relapse. Either way, like you, I am now better prepared to cope with whatever comes.

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