Comments on: MS and a Regular Schedule? Hmmm…

By: Jen

Jen — Mon, 21 Jul 2008 17:16:03 +0000

The Betaseron still gives me flu symptoms sometimes. Took a while to get used to it, but it’s better than it was. The big thing for me is to drink a lot of water throughout the day, because the interferons dehydrate patients. It’s like going out drinking and waking up with a hangover! Headache, body aches. It depends on the day. I get a doozie of a shot about every 2 weeks. But I’m too afraid not to take it, and I actually had been pretty good health-wise these past 2 years (until the recent relapse.)

By: Nadja Tizer

Nadja Tizer — Sun, 20 Jul 2008 23:23:16 +0000

Are you still on the Betaserin? Could that perhaps be the cause of your suffering? Pretty much all the MSers I know in person said their drugs made them sick and they eventually got off of them due to the side effects. These people are all doing better now and have not had a relapse in many years.

By: Jen

Jen — Sun, 20 Jul 2008 16:04:00 +0000

Thanks, Lisa, for the encouragement. I think everyone needs to feel that they have a purpose.

By: Jen

Jen — Sun, 20 Jul 2008 16:01:11 +0000

I wish I was better in the morning. My circadian rhythms are all screwed up! Without a consistent schedule, I have become more of a night owl. I think, too, it’s a biproduct of the insomnia that I had while doing steroid therapy last month. It takes me a good month to get my sleep back to normal, so I think I’m still a little deprived. I’m better at night right now. Vampire syndrome..ha ha!…

By: Lisa Emrich

Lisa Emrich — Sun, 20 Jul 2008 02:36:15 +0000

Afternoons at 1-5pm would be the toughest time for me if I were to have a regular job/volunteer. That’s prime heat and nap time. Perhaps mornings would be easier? I understand how important it is to feel productive and useful. Good luck.