Comments on: Multiple Sclerosis and Perspective http://www.msstrength.com/multiple-sclerosis-and-perspective/ Within every Multiple Sclerosis Patient there Lies an Indomitable Strength. Thu, 11 Mar 2010 03:18:59 +0000 http://wordpress.org/?v=2.9 hourly 1 By: Jen http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-1014 Jen Mon, 20 Jul 2009 16:30:25 +0000 http://www.msstrength.com/?p=2647#comment-1014 Great how we get the 360-degree perspective of our mates over time. And they us. :) Great how we get the 360-degree perspective of our mates over time. And they us. :)

]]> By: Diane J Standiford http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-1013 Diane J Standiford Mon, 20 Jul 2009 01:40:11 +0000 http://www.msstrength.com/?p=2647#comment-1013 OK, call me stupid (no don't, that's not nice)but (Oh well, go ahead) I have never had a problem with this. I don't NEED to know every detail of a person's life or health to understand their perspective---I ASK. That simple. I ask. "Why do you say that?" "What do you mean?" "How does it feel?" Unless you ask or I tell, of course you can't know about my MS. The Doc ex---FACTS, he/she better be dealing in scientific facts and let me know when we are discussing anything else. When I was first DX I secrectly wished someone, ANYONE else in my work place would get MS. (Hated myself for it too) Then people started getting Lupus, etc., and that was as good...just being unwell will suffice when it comes to people being more understanding. But I gotta tell ya, even when I was healthy, I always asked. (Probably out of desire not to treat the unwell with fear like my relatives did, and kids at school.) It has always been simple to me. (I guess that is why I can stay with someone 360 from me, for 30 years.) OK, call me stupid (no don’t, that’s not nice)but (Oh well, go ahead) I have never had a problem with this. I don’t NEED to know every detail of a person’s life or health to understand their perspective—I ASK. That simple. I ask. “Why do you say that?” “What do you mean?” “How does it feel?” Unless you ask or I tell, of course you can’t know about my MS. The Doc ex—FACTS, he/she better be dealing in scientific facts and let me know when we are discussing anything else. When I was first DX I secrectly wished someone, ANYONE else in my work place would get MS. (Hated myself for it too) Then people started getting Lupus, etc., and that was as good…just being unwell will suffice when it comes to people being more understanding. But I gotta tell ya, even when I was healthy, I always asked. (Probably out of desire not to treat the unwell with fear like my relatives did, and kids at school.) It has always been simple to me. (I guess that is why I can stay with someone 360 from me, for 30 years.)

]]> By: Jen http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-1007 Jen Mon, 13 Jul 2009 20:02:15 +0000 http://www.msstrength.com/?p=2647#comment-1007 Hi Nadja-- If I had your schedule I'd be sleeping about 12 hours a day myself! LOL. It's amazing how tiring full-time work is for those WITHOUT MS, never mind those with it. I think whatever works well for the individual is probably the best answer. Jen Hi Nadja–

If I had your schedule I’d be sleeping about 12 hours a day myself! LOL. It’s amazing how tiring full-time work is for those WITHOUT MS, never mind those with it. I think whatever works well for the individual is probably the best answer.

Jen

]]> By: Nadja Tizer http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-1006 Nadja Tizer Mon, 13 Jul 2009 19:11:49 +0000 http://www.msstrength.com/?p=2647#comment-1006 Well said. Sometimes I wonder if my doctors and holistic practitioner would change their tune about my sleep habits if they had MS. They keep telling me not to sleep more than 9 hours and to avoid naps but I am often exhausted. Sometimes I find 12 hours of sleep and a nap healing. At times like that I am not more tired from sleeping, the sleep makes me feel better. Well said. Sometimes I wonder if my doctors and holistic practitioner would change their tune about my sleep habits if they had MS. They keep telling me not to sleep more than 9 hours and to avoid naps but I am often exhausted. Sometimes I find 12 hours of sleep and a nap healing. At times like that I am not more tired from sleeping, the sleep makes me feel better.

]]> By: Jen http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-1004 Jen Mon, 13 Jul 2009 14:00:56 +0000 http://www.msstrength.com/?p=2647#comment-1004 Hi Ivy-- I have to remind myself about perspective more often than I care to admit. It's one of my personal challenges. But today is beautiful and sunny, so I'm gonna enjoy! Hope you do too. Jen Hi Ivy–

I have to remind myself about perspective more often than I care to admit. It’s one of my personal challenges. But today is beautiful and sunny, so I’m gonna enjoy! Hope you do too.

Jen

]]> By: Ivy http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-1003 Ivy Mon, 13 Jul 2009 11:28:42 +0000 http://www.msstrength.com/?p=2647#comment-1003 Beautifully written and so well stated! These are things I should keep in mind, but often forget. It's pretty easy to get wrapped up in things and throw perspective out the window. Thank you for the thoughts to ponder. Beautifully written and so well stated! These are things I should keep in mind, but often forget. It’s pretty easy to get wrapped up in things and throw perspective out the window. Thank you for the thoughts to ponder.

]]> By: Jen http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-1001 Jen Sun, 12 Jul 2009 16:59:58 +0000 http://www.msstrength.com/?p=2647#comment-1001 :) :)

]]> By: R. Shaw http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-999 R. Shaw Sat, 11 Jul 2009 23:21:04 +0000 http://www.msstrength.com/?p=2647#comment-999 I'm impressed. You are really an excellent writer. You seem to have hit on the word "perspective." I agree and I think of the word "relative." It is so true, that it is extremely difficult to be in another's shoes, but it does benefit one to try to understand. I’m impressed. You are really an excellent writer.
You seem to have hit on the word “perspective.”
I agree and I think of the word “relative.”
It is so true, that it is extremely difficult to be in another’s shoes, but it does benefit one to try to understand.

]]> By: Jen http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-998 Jen Sat, 11 Jul 2009 13:58:48 +0000 http://www.msstrength.com/?p=2647#comment-998 Thanks, Carrie. I've been following LDN myself for the past 5 years or so. I currently take a disease-modifying med, which has been working very well for me. Thanks also for providing the LDN links for other readers :) Thanks, Carrie. I’ve been following LDN myself for the past 5 years or so. I currently take a disease-modifying med, which has been working very well for me.

Thanks also for providing the LDN links for other readers :)

]]> By: Carrie http://www.msstrength.com/multiple-sclerosis-and-perspective/comment-page-1/#comment-996 Carrie Fri, 10 Jul 2009 21:08:59 +0000 http://www.msstrength.com/?p=2647#comment-996 Have you heard about LDN? Stands for Low Dose Naltrexone.. I would research it if you haven't. It's not a miracle, but it's pretty amazing. check out ms.about.com for her new updates on taking LDN. I've had great success in my 6 weeks.. I'm RRMS so spend most of my time in remission, but have noticed this past year that it was starting to effect me more physically. One thing I've already noticed since starting LDN - no more leg and foot cramps in the middle of the night! But really it's awesome so google it or check out lowdosenaltrexone.org or the lowdosenaltrexone yahoo group! Have you heard about LDN? Stands for Low Dose Naltrexone.. I would research it if you haven’t. It’s not a miracle, but it’s pretty amazing. check out ms.about.com for her new updates on taking LDN. I’ve had great success in my 6 weeks.. I’m RRMS so spend most of my time in remission, but have noticed this past year that it was starting to effect me more physically. One thing I’ve already noticed since starting LDN – no more leg and foot cramps in the middle of the night! But really it’s awesome so google it or check out lowdosenaltrexone.org or the lowdosenaltrexone yahoo group!

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