Comments on: Review: Women Living with Multiple Sclerosis

By: Linda D.

Linda D. — Tue, 04 Nov 2008 23:56:10 +0000

Book reviews rock…even if I never get around to buying/reading the book, I always feel I’ve gotten something important from reading a review. THanks!

Linda D. in Seattle

By: Jen

Jen — Mon, 03 Nov 2008 02:14:59 +0000

Lisa–

You’ve gotta read it. It has MSers of all abilities, just like in the blogosphere.

It’s funny but I often prefer the company of guys. I’m kinda a tomboy (I wear lipstick on occasion and I dress like someone out of an LL Bean catalog.)I also enjoy fishing, golfing, and going down to Atlantic City. Bill and I always laugh that he’s the sweeter, more compassionate woman and I’m the braver, gruffer man. Role reversals. I’m beginning myself to appreciate the company of women.

By: Jen

Jen — Mon, 03 Nov 2008 02:07:53 +0000

Hi Merely!

What’s sad is that I haven’t even told my buddies who occasionally read this that the URL changed. My parents (usually silent readers) and I guess anyone else they tell know the new web address, but I still have to email some of my friends about it. So if one of them occasionally reads, they are completely confused right now. Where did Jen go?…

Yeah– this book talks about self-catheterizations, running to go poop (a subject near and dear to my heart), and yes– SEX.

By: Lisa Emrich

Lisa Emrich — Mon, 03 Nov 2008 02:02:51 +0000

I have this book, but haven’t read it yet. I got it sometime in the spring after getting more involved in the MS Blogging thing. Growing up around mostly boys, it took me many years to learn how to have girlfriends. I’m glad that I finally learned that skill.

By: Jen

Jen — Mon, 03 Nov 2008 01:57:17 +0000

You’re welcome, Nadja. I didn’t seek out people when I was having a rough time. I knew one person with MS who was doing way better than me and one who was doing a lot worse. Here it seems like people can at least find others who are somewhat similar in disease course.

I haven’t had the guts to attend an in-person support group yet. I’ve been to a few one shot seminars and have met some other MSers while volunteering, but nothing steady or deeply revealing . I’m not sure I’m ready for that(yet.)

By: Nadja Tizer

Nadja Tizer — Sun, 02 Nov 2008 23:19:20 +0000

Thanks for sharing this review. I have not really found a support group either but I find that I get a lot of great support out here from people like you. Thanks for being such a caring friend.

By: Merely Me

Merely Me — Sun, 02 Nov 2008 19:04:48 +0000

Hey there…

I thought I had lost ya. You changed your name. Went to your old site and it was gone.

yes this is a great book…i have it in my bookcase! they even talk about sex!

By: Jen

Jen — Sun, 02 Nov 2008 18:03:44 +0000

Seriously– this is one of the best books about MS and female friendship out there. I go back to it often to bolster myself up. There are so many “how-to” books that aren’t written by MS patients but scientists and doctors. So this one is unique and definitely worth a read.

By: Lanette

Lanette — Sun, 02 Nov 2008 16:47:04 +0000

Cool – I am going to get this book! Thanks for the review!

By: Jen

Jen — Sun, 02 Nov 2008 16:05:54 +0000

Yes, Joan, I agree that the first book is better. And I can’t remember why, either! I read both about 3 or 4 years ago. I have my own copy of the first one, too.