Comments on: Weekend Getaway Benefits All

By: Jen

Jen — Thu, 31 Jul 2008 15:52:59 +0000

Hey you guys—-

Thanks for reading and commenting. I’m doing better than I was in June, but I’m still a little slow. Depends on the day. I have a great support network, though, including you guys! We’ll get together soon and get up to the Tiki Bar again. Let’s shoot for Aug/ early Sept.

Talk to you soon.

Love,

Jen

By: Tami

Tami — Thu, 31 Jul 2008 02:27:04 +0000

Hey Jen,

I am totally amazed by your website. I am so proud of you for talking about it – complaining about it – doing something to fix the problems others have about it. It is refreshing to see your positive attitude. Your a role model to look up to. You have a lot of support which is wonderful and appreciated by you.

I am here for you if you need it. I will do anything I can to change this disease. I will fight with you and stand by your side during bad days.

I hope with your awareness & your website others will join in this fight we need to beat.

Our love & our prayers are with you every day.

Love,

Tami & Judi

By: Jen

Jen — Wed, 30 Jul 2008 20:03:03 +0000

I feel like my computer is some kind of metaphor for my actual life—- it keeps overheating and I have to shut it off! I want to stay on and overdo it, but it makes me take breaks. I want to read more blogs, and yet I have to do what the computer tells me or it freezes up. So I’m slow with reading new blogs or even the ones I’ve already discovered.

It’s just frustrating because I think I’ve declined a little in this recent relapse and as MSers know, it’s hard to tell what will be temporary and what will be permanent damage. So I’m kind of stuck right now, feeling my way out of this new confusion.

By: Lisa Emrich

Lisa Emrich — Wed, 30 Jul 2008 18:47:17 +0000

Sounds like you had a nice getaway. Good job developing some understanding of your limitations while acknowledging your ability to do more. The concept of “being” is one which I enjoy often.

By: Jen

Jen — Wed, 30 Jul 2008 17:21:17 +0000

I think we just crossed paths without knowing it (I just posted to your blog a few moments ago.)

Yes, I’m forcing myself to slow down. The library I worked at recently called me about a part-time opening and I had to decline. I’m slowly adding volunteer hours to my schedule as the summer goes on. Not pushing it, as my neurologist has warned me.

I have a mountain of writing (for my website) that I have to finish by the 31st. I owe 2 articles, so that will take up my time for a while.

By: Nadja Tizer

Nadja Tizer — Wed, 30 Jul 2008 17:00:20 +0000

It sounds like you have some really great perspective on your MS now. I like what you said about just “being.” It feels good to slow down and really be present and enjoy each activity as it comes instead of rushing through life. Learning I had MS was very difficult but learning about what really matters was/is priceless. I am really learning to cut myself some slack and to say “no” when I must. I think those around me are learning my limits too.